Anonymization operations do not provide a way to supply context

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    • Type: Change Request
    • Resolution: Persuasive with Modification
    • Priority: Medium
    • US Making EHR Data More available for Research and Public Health (MedMorph) (FHIR)
    • 0.1.0
    • Public Health
    • Generate Anonymized Bundle
      Generate De-Identified Bundle
      Generate Pseudonymized Bundle
      Generate Re-Identified Bundle
    • Artifacts Summary
    • 15.0.2
    • Hide

      An additional parameter will be added to the operation to specify the context which can communicate the salt values and/or the reporting program name or some other context that is necessary. This will be an optional parameter, because some implementations may just choose the salt values internally and maintain a single mapping.

      Show
      An additional parameter will be added to the operation to specify the context which can communicate the salt values and/or the reporting program name or some other context that is necessary. This will be an optional parameter, because some implementations may just choose the salt values internally and maintain a single mapping.
    • Kishore Bashyam / Craig Newman : 28 - 0 - 1
    • Correction
    • Compatible, substantive

      Techniques for conducting privacy preserving record linkage (PPRL) typically rely on hashing or the construction of Bloom filters (which also relies on hashing). For these techniques to prevent re-identification, they rely on using a salt (or technically a pepper) value that is kept secret and added prior to hashing.

      The current definition of the FHIR operations does not offer a parameter that could be used to pass in any context for the operation, such as a salt value or a place to obtain the salt value.

      For re-identification, a similar issue applies. It is assumed that the Bundle will contain a set of identifiers that can be used to re-link to PII. Unless the Trust Service maintains a single mapping of identifiers to PII, there will be a need to specify which mapping to use. For example, a Trust Service may generate a new set of identifiers for individuals for each public health research question asked to prevent re-identification across studies. 

      Consider adding a parameter to these operations to allow specification of de/re-identification context.

            Assignee:
            Nagesh Bashyam
            Reporter:
            Andy Gregorowicz
            Watchers:
            1 Start watching this issue

              Created:
              Updated:
              Resolved: