Has there been any discussion about scenarios in which the Sender does not send all available data per a patient’s request?

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    • Type: Change Request
    • Resolution: Persuasive with Modification
    • Priority: Highest
    • US SDOH Clinical Care (FHIR)
    • 0.1.0 [deprecated]
    • Patient Care
    • Must Support and Missing Data
    • 12
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      The standard for this IG is to send only the information required for the recipient to interpret the request for a service.  However, there is no provision for sending less than the elements required by a specific exchanged resource to meet the profile definition. 

      Will include some guidance on the ability to use a Smart on FHIR to app to allow patients to restrict the exchange of information that is not required to interpret the intent of a specific resource (e.g. remove address and/or telephone number from the patient resource prior to sending it to a community based organization) but has the potential to cause social risk.

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      The standard for this IG is to send only the information required for the recipient to interpret the request for a service.  However, there is no provision for sending less than the elements required by a specific exchanged resource to meet the profile definition.  Will include some guidance on the ability to use a Smart on FHIR to app to allow patients to restrict the exchange of information that is not required to interpret the intent of a specific resource (e.g. remove address and/or telephone number from the patient resource prior to sending it to a community based organization) but has the potential to cause social risk.
    • Bob Dieterle / Jay Lyle : 7-0-3
    • Clarification
    • Non-substantive

      Follow up on above comment about a patient’s expressed desire to not send all data elements – has there been any discussion about scenarios in which the Sender does not send all available data per a patient’s request (privacy or other reasons)?

      Existing Wording:

      • When receiving a SDOH transaction from the Sender, the Receiving System SHALL interpret missing data elements within resource instances as data not present in the Senders systems.

      (Comment 32 - imported by: Robert Dieterle)

            Assignee:
            Unassigned
            Reporter:
            Celine Lefebvre
            Celine Lefebvre
            Watchers:
            2 Start watching this issue

              Created:
              Updated:
              Resolved: